Thursday, November 26, 2009

Thansgiving Toast

Happy Thanksgiving to all!

Required listening:
Alice’s Restaurant – Arlo Guthrie
http://www.youtube.com/watch?v=5_7C0QGkiVo

There will be one less plate set at the table today. Nettie passed quietly yesterday afternoon. I am hoping that the solemnity that accompanies the loss does not overshadow the feistiness that she always brought to the table. Thanksgiving is a celebration of all that we have and we enjoy gifts aplenty. We may take a longer pause in remembrance but in order to honor Other Nana correctly we should not delay the feast too long. She would have wanted us all to eat and to eat heartily. Make an extra toast today and then indulge, it’s what Nana would have wanted.

Earlier this year, Nettie’s battle with dementia inspired me to write the song Raggedy Annie. Here’s a link to the words.
http://invasivemaneuvers.blogspot.com/2009/04/backtracking.html

So what does this leave us on this holiday? It leaves us with all that we had and more; more because we get to again acknowledge and cherish the gift of life that we enjoy. In this house it has been a fairly rough year but we persevered. Troubling times look to be passing. We will grieve and then we will continue to live. I pray we do not squander these precious gifts on things that are neither enjoyable nor meaningful.

Slainté! (Cheers!)
Le-chaim! (To Life!)

Tuesday, November 24, 2009

Sitting Vigil

Time is on my side but I can’t trace time.
Time marches on but where has the time gone?
Ain’t it funny how time slips away?

A combination of clichés and song lyrics can not describe the emotions of a family as they watch time takes its toll. We got the panicked call on Sunday that Nettie, the Other Nana, Renee's grandmother, was being taken from the nursing home to the hospital via ambulance. Again we find ourselves at Baptist Hospital East.

Nettie is racked with pneumonia, fluid has built up around her heart, kidneys have ceased to function, oxygen levels dropping. Still her grip is like a vice. Just try to pry the bag she holds away from her, you’ll lose, amazing.

Ninety two years is a long time. According to government statistics the life expectancy of a female born in 1917 was 54 years. Exceeding expectations does not make this any easier. Sons and daughters and grand-children and great-grand-children hover and try to ease the suffering of both the patient and each other. Just like Nettie, no one wants to let go.

Last evening we got to see the spark in Nettie's eyes when Renee woke her to let her know Cassidy was there. Elation came over Other, she brightened the whole room and for a minute we all forgot about the time.

Saturday, November 21, 2009

Snake in the Grass

I'm sick in the head and I haven't been to bed
Since I came ashore with me plunder
I've seen centipedes and snakes and me head is full of aches
And I think I’ll set a path for way out yonder - All For Me Grog, Irish trad.


Who goes to Cleveland for lunch? There’s probably a few folks in northern Ohio who’ll do it, but from Louisville? The things I do for Renee!

I was just coming off a 48 hour fever burst. I don’t know what I had but it made for one real unpleasant night and a couple of days of stomach ills, chills and acetaminophen pills but luckily no spills. Renee made sure the spill bucket was handy, though. What a sport! Oh, don’t swoon over how she’s taking care of me now. She offered the bucket then flew the coop to run errands. I play nursemaid for a year and the first chance she gets to reciprocate she goes shopping. Then, as soon as the fever breaks, I climb into the driver’s seat and chauffeur Renee to Cleveland and back for her post-op check up. I think this maidservant relationship is a little one-sided don’t you?

Easy, I know what you’re thinking. You think I am trying to lay the whole Jewish guilt trip on Renee right before the holidays. You’re wrong. I am laying the Catholic guilt trip on her because I know that she can’t just run to confession, say a couple of Hail Mary’s and an Our Father and feel absolved for her inconsiderations. She’s going to have to carry it until Yom Kippur. And now I have almost a whole year to milk this one. Bless me Father for I have sinned …

If you are going to Cleveland for lunch, I highly recommend The Flat Iron, an Irish pub in the Flats section. The menu is more extensive than the usual pub fare, the service is spot on and they know how to pour and serve Guinness. That’s three for three, add the best pierogies in town and it’s a can’t miss meal.

At the hospital, Renee explained all that has been happening in the six weeks since surgery to the doctor. Leaving out of course all of the parts where she has ignored post-op instructions on diet and exercise. There is some continuing pain and frequency of bathroom visits is way above the levels where it should be. The doctor was concerned. He immediately ordered a pouch scope. Renee was whisked away to the facilities to get an assisted enema. I was escorted to the room where the procedure would be performed. Woo hoo! I get to watch!

I entered the room and the nurse thought I was the customer. Yikes! Not me lady, that area is off limits – except to my personal physician whom I have chosen specifically based on her small fingers. Guys, if you’re over forty you’re going to have to do it. Just bend over and take it like a man. But first pick the right doctor to do the probing.

Renee came in following her cleansing and they had her climb up on the table. The doctor performed a finger examination. I am not sure why. He was just about to stick a camera up there. I guess he was just trying to get a feel for it. Ass doctors are a strange lot.

Then … then … then they pulled out the camera. Holy Periscope Batman! It’s the size of an anaconda! There are really not enough exclamation points to show my surprise. It’s a darn good thing Renee had her back turned and couldn’t see what he was about to jam up her hind quarters. Hi-di-ho, here we go!

They had two separate monitors hooked up so we could all see what was going on. The doctor explained what we were looking at. He pointed out the staples holding the whole thing together. He pointed out the pink healthy tissue that means the J-pouch is working like it should. He showed us a large ring of irritation where a three centimeter piece of the colon was left in order to connect the small intestine to the rectum. There’s the problem. Renee’s got what the surgeon called an “angry cuff,” medically termed cuffitits.

Renee asked, “who is it angry at?” The doc said, “YOU.” The doctor made a joke. He’s lightened up a bit since the first time we met him but I guess he needed to get into his element before he could relax enough to start making jokes. Now he’s yukking it up while checking Renee’s pipes. I’m sure we’ll see him on Comedy Central doing stand up next. Though for props he’ll need a live patient willing to take a rear probe. Any volunteers?

The best part of this whole uncomfortable procedure though was the look on Renee’s face when the doctor, after explaining that the angry cuff was a small and simply curable irritation, used the sentence “the next time you come back...” Renee thought this was it, no more Cleveland, no more Double C. She thought she was done. She looked like I must’ve when I saw them pull out the anaconda camera. It ain’t over till it’s over, Yogi.

Buried in all of this was the good news we received. The pouch is working. There were no signs of Crohn’s Disease, dysplasia or cancer in the colon that was removed or any of the surrounding tissue. A month taking suppositories before bedtime and the cuffitis should clear up. Way back in July 2008, the doctor gave us a projection of returning to some type of medical normalcy for Renee. It was this coming January. We’re still on track to make it. But there will still be follow up visits and scopes and scans just like in the months and years following the kidney cancer. Renee’s plans to cut the cord with the Cleveland Clinic were premature just as mine to retire my paper nursemaid’s cap were.

If we’re both feeling a little snake bitten I think you can understand why.

Saturday, November 7, 2009

Balance

Required listening:
I searched for an appropriate balance song but couldn’t find one. If you have suggestions please send them. I may have to write one myself, until then listen to these, they're kind of on topic and are just great songs.

The Weight – The Band
http://www.youtube.com/watch?v=yfyjhtOTy1s

Tightrope - Stevie Ray Vaughn
http://www.youtube.com/watch?v=8e0pO2fBGLY

Tightrope - Leon Russell
http://www.youtube.com/watch?v=d2Z9qN8R9Bg

Baseball season has left us. The Yankees take their rightful place at the top of the heap and balance can now return to the planet. If you’re paying attention you’ll notice things have been off center since the season following the Yanks 26th World Series victory in 2000. It is now time for the rest of the world to get back on track.

This is what we are trying to do here on our little slice of earth - center, balance, return to normalcy, or at least to the level of functionality we enjoyed before Renee’s organs began piping out disharmony. We thought we were getting all of this under control. We thought Renee was on track to return to work following Thanksgiving break. And then …. and then … the letter came.

Renee got selected for jury duty the first two weeks of December. Maybe Big Brother knows better than us when Renee should return to work. Maybe the great and good government realizes that the daycare center, uh hmm, I mean pre-school, is nothing but a germ-inator. They are teaching the kids letters and numbers like H1N1 but when the swine invades the temple you know it’s a good idea to stay away, at least until they can get a kosher flu bug to spread.

Medically, Renee makes progress daily, except for those days following the iron infusions then she is asking if I got the number of the truck that hit her. Three more intravenous helpings and her stores should be filled. When the post-op body trauma has calmed the iron storage mechanisms should return also.

We got word this week that her B-12 is way below where it should be though. B-12 deficiency is definitely not what you want to hear when you are in post-op recovery. When this little vitamin stops being absorbed it can cause a dozen problems. We’re waiting on the blood doc to tell us what the course of action will be to deal with this. Hopefully it is just a blip but our radar is working overtime.

The accountant in me is trying to work in a balance sheet metaphor but this is about a different type of reckoning. It is all just a balancing act by a confirmed klutz who is angling for the scales to tip her way. Maybe she needs one of those poles the highwire artists carry - Yes! The ideas for the mandatory giving of useless presents season are formulating.